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A Look Into Practice-Wide HIPAA Education with Ashley Trotto

By Griffin Jones

This is the fifth interview in a series exploring the implications of the Health Insurance Portability and Accountability Act (HIPAA) as it relates to digital media.

Ashley N. Trotto

Ashley N. Trotto

Ms. Ashley Trotto practices health care law in Knoxville, Tennessee. Ms. Trotto’s comments do not contain legal advice, but they do educate us about some of the risks that face fertility centers with respect to HIPAA and social media. The reason I’ve reached out to Ms. Trotto and other experts in healthcare law is because there is surprisingly little guidance online about HIPAA and social media. Much of the information available is vague or may even be incorrect. I asked Ms. Trotto why there is so little information on the subject.

Trotto: The information that is online is often gray, which is understandable because the Department of Health and Human Services (HHS) and the Office of Civil Rights (OCR) have not issued guidelines regarding social media and HIPAA. But it’s coming. We don’t know when, but the agencies will have to issue guidelines eventually.

The greatest unknown for healthcare providers in social media may be when a patient posts their own information. I think we all know to never post protected health information (PHI) on our websites or social media without express written consent.

You would think it’s common knowledge not to post patient information without authorization, but apparently it’s not as common as we might think. If you read some of the briefs of these breaches, most of them are inadvertent. There are 18 different identifiers that are addressed in HIPAA’s privacy rule. A staff member may believe that they are not publishing patient information, but many factors can be used to identify a patient. There have been breaches where the practice or staff members have shared information without the patient’s explicit consent. While any consent would be better than none, HHS has specific regulations regarding what is needed for a HIPAA authorization.

For this reason, I recommend against publishing any patient information whatsoever unless accompanied by a HIPAA authorization for the explicit use of marketing and social media. What happens when patients post their own information to a fertility practice’s blog, place page, or social media channel?

Physicians can’t stop patients from posting their own information. A big concern would be if patients posted content that included information about other patients. The practice would want to take that down, but a patient is free to talk about their own information wherever they like.

Is acknowledging a patient comment or review with a simple “Thank you”, or “We take your concern very seriously, please call us at…” disclosure of the patient-physician relationship?

 Generally, no. I wouldn’t be concerned about responding where the patient has already disclosed that information. However, that the doctor or practice must be very careful not to offer medical advice or include any additional information that the patient did not.

What should healthcare providers be doing right now to ensure HIPAA compliance?

The greatest action a practice can take to prevent a breach of HIPAA is to implement team-wide education. We need everyone in the practice to know what HIPAA is, what PHI is, and what a breach is. Practice-wide education is key, and policy drafting is second. Practices need to have a privacy officer who is in charge of HIPAA compliance so it may make sense to bring in outside firms who can help explain the complex law and implement training procedures.

Generally, I think the biggest thing is just being aware. The smallest mistake could be a breach. There is a recent example of a HIPAA breach where a medical practice used an online scheduling calendar in which users could see the names of other people who had scheduled appointments, and their appointment times. The breach wasn’t intentional, but the calendar was not secure, and the practice was found in violation.

To name just one HIPAA risk to look out for would be extremely difficult. But to name one thing that you can do to protect your practice—that would absolutely be education and training for the entire team.

Ashley Trotto focuses her practice on Affordable Care Act (ACA) compliance. She practices with the firm, Kennerly Montgomery, in Knoxville, Tennessee. If you would like to learn more from Ashley’s expertise, you can contact her here.

Start With The Law: An Interview on HIPAA and Social Media with Paul Hales

Paul Hales

Paul Hales

This is the fourth interview in a series exploring the implications of the Health Insurance Portability and Accountability Act (HIPAA) as it relates to digital media.

Paul Hales is an attorney from St. Louis, who specializes entirely in HIPAA law. Mr. Hales’ comments do not contain legal advice, but they do educate us about some of the risks that face fertility centers with respect to HIPAA and social media. Mr. Hales gives us some background on the Act.

Hales: We have to start with the law. My focus is on enabling practitioners to make use of social media and comply with the law. HIPAA was passed in 1996 with two objectives;

  1. To be able to keep insurance when switching from one provider to another.

  2. To have a uniform code for information and payment

It has had further additions since.

  • The privacy regulations were added in 2003.

  • The HIPAA security rule was added in 2005

  • HITECH was passed in 2009.

  • In 2013, the Omnibus rule was added to HIPAA to extend liability to “business associates”.

What is a business associate?

A “business associate” is a person or entity that performs certain functions or activities that involve the use or disclosure of protected health information on behalf of, or provides services to, a covered entity.

What are common areas in which covered entities and businesses associates fail to meet HIPAA compliance?

  • Protected Health Information (PHI) is made up of 18 identifiers, including but not limited to name, e-mail address, full face photos, and date of birth.

  • Under HIPAA, every health care practice or organization must designate a privacy officer. The privacy officer must perform a risk-analysis.

  • Health plans and covered health care providers are required to develop and distribute a notice that provides a clear explanation of privacy rights and practices with respect to patients’ personal health information.

What about when a patient posts their own information on a blog, social media channel, or place page operated by the practice?

It’s important to look at how HIPAA defines a website, which is any site that provides information about a covered entity’s services or benefits. Therefore, if a patient posts their own information to a site that’s owned by the practice, that is unauthorized PHI on the practice’s site. The practice has to obtain HIPAA authorization before allowing any patient content to be published to its sites.

What is necessary in a HIPAA authorization?

HIPAA Authorizations have six core elements:

  1. A specific and meaningful description of the information to be used or disclosed.

  2. The name or other specific identification of the person(s), or class of persons, authorized to make the requested use or disclosure.

  3. The name or other specific identification of the persons(s), or class of persons, to whom the covered entity may make the requested use or disclosure (i.e., the intended recipients).

  4. Description of each purpose of the requested use or disclosure.

  5. Must contain an expiration date or an expiration event.

  6. The signature of the individual and the date.

 

A HIPAA authorization must also include three statements.

  1. Individual’s right to revoke the Authorization.

  2. Clarification that the covered entity is not permitted to condition the provision of treatment on the execution of a valid Authorization.

  3. Explanation that there is a potential that the information may be re-disclosed by the recipient of the information and that the recipient may not be required to comply with the Privacy Rule.

What should fertility practices be conscious of right now to minimize risk of HIPAA violations?

Recently, there has been more enforcement, and soon there will be audits. On February 16, 2016 the Office of Civil Rights (OCR) settled an enforcement action against Complete P.T., Pool & Land Physical Therapy, Inc. for impermissibly disclosing patient information in the form of testimonials on their website. HIPAA is a very extensive law. There is a lot of information on the internet that is simply wrong. HIPAA regulations are very demanding and products cannot ensure compliance. No product can be HIPAA compliant. It’s how a covered entity uses a product that makes it compliant or not.

Paul Hales is an attorney who provides legal services and consultation regarding HIPAA compliance. His software, the HIPAA e-tool helps covered entities and business associates with a complete HIPAA compliance solution. If you’re interested in an educational webinar with Mr. Hales, you can register here.

Legal Considerations When Responding to Online Patient Reviews: An Interview with Eric Goldman

Eric Goldman

Eric Goldman

This is the third interview in a series which explores digital media and the law, including questions about HIPAA and online engagement.  Eric Goldman is a professor at Santa Clara University School of Law. While Mr. Goldman's answers don't provide us with legal advice, they do give us some insight into how fertility practices might consider the law when responding to patient reviews online.

Jones: Should physicians respond to reviews written about them online? Why or why not?

Goldman: In most circumstances, physicians either should not respond to online reviews or respond generically by thanking the reviewer and indicating that the physician appreciates and carefully considers online feedback. It rarely makes sense to get into substantive discussions with reviewers online. Not only could such discussions implicate HIPAA, but physicians often look thin-skinned and petty when they attempt to debate fact matters online. Furthermore, increasing the number of comments to a review may actually cause search engines to rank the content higher (a counterproductive result if the review is negative). If the physician chooses to engage a negative review about the facts (which is rarely if ever advisable), the response should discuss the office’s general practices and not discuss how those practices were applied in the reviewer’s specific situation.

J: What information should physicians never include in their responses to reviews?

G: Given the boundaries of HIPAA, there are few circumstances where a physician can discuss any individual facts about the reviewer. Indeed, it is potentially problematic to even acknowledge that the reviewer is a patient.

J: Are there different implications for responding to patients when their identities are public (ex. Facebook) vs. when they are anonymous (ex. RateMDs)?

G: I couldn’t think of any.

J: Are responses to reviews considered protected health information (PHI) if the patient posted the information?

G: It’s a risky practice for physicians to confirm information that a patient or family member voluntarily publicly disclosed.

J: What should physicians and practices always be wary of regarding online reviews and their public reputation?

G:

  1. Prospective patients are increasingly looking at other patients’ reviews when selecting physicians. I know many physicians wish this weren’t true, but there’s no point pining for an alternative universe.

  2. Prospective patients are savvy enough to discount outlier reviews. If one negative review is surrounded by multiple positive reviews, it will have minimal effect on the physician’s reputation.

  3. Patients’ reviews of their physicians are overwhelmingly positive, i.e., in some cases 90%+ of patients’ reviews are positive.

  4. If a physician deals with dozens or hundreds of patients, inevitably there will be a few unhappy patients who will vent online.For these reasons, physicians should be actively encouraging their patients to review them online. This will better inform future prospective patients, and it usually will help create a base of positive reviews that will insulate the physician from the occasional negative reviews that inevitably will come.

G: A final thought: getting negative feedback never feels good, but it can provide a candid insight into the patient’s experiences. If the physician can overcome the emotional sting of a negative review, there may be valuable customer feedback that can help physicians do a better job meeting their patients’ needs.

If you would like to read a short essay by Mr. Goldman which explores how doctors and other healthcare professionals have responded to patient reviews of their services and addresses how they should deal with patient reviews in the future, you can find it here.

1 Big Unexpected HIPAA Risk Facing Fertility Centers Online: An Interview with Rachel Yaffe

By Griffin Jones

This is actually the second interview in a series exploring the Health Insurance Portability and Accountability Act (HIPAA) that I recorded in August of 2015 and published in September. The Fertility Bridge blog was not active in its current form, then. I wanted to make sure this interview was in the blog archives because (speaking for myself) HIPAA is not always as common sense as we would like it to be. Rachel Yaffe practices healthcare law in Chicago. Ms. Yaffe's comments are not legal advice, they simply offer us some insight into how HIPAA might impact a fertility center's digital media strategy. In this interview we discuss

  • What are the implications when a patient posts their own information on a fertility center's website, place page, or social media channel?

  • Should practices follow patients on platforms like Twitter and Instagram?

  • Should practices have personal Facebook pages for their business?

Rachel Yaffe represents physicians, medical practices, laboratories, pharmacies, and other healthcare clients in corporate, transactional and regulatory matters. She practices with the firm, McDonald Hopkins in Chicago. If you would like to learn more about HIPAA compliance from Rachel, you can contact her here.

Every Fertility Center Needs a HIPAA Compliant Social Media Strategy: An interview with Mike Bossenbroek

By Griffin Jones

This was the first interview that I did in a series exploring the Health Insurance Portability and Accountability Act (HIPAA) and its implications regarding digital media. I originally recorded this interview in August of 2015,  before the Fertility Bridge blog was active in its current form. Per usual, my video intro is corny, and very crudely edited, but the content is very valuable because practices should educate themselves about HIPAA considerations in social media as much as they can.

Michael Bossenbroek practices healthcare law in Michigan. Of course, Mr. Bossenbroek's comments are NOT legal advice, but they give us important information to consider about how fertility centers should approach social media and patient engagement. In this interview, we address

  • What are some things that a HIPAA compliant social media policy should include?

  • Where should a fertility practice's social media policy be visible?

  • What else should fertility practices consider when deciding their activity on social media?

Michael Bossenbroek is a partner at Wachler & Associates, P.C.  in Royal Oaks Michgian. Mr. Bossenbroek practices in all areas of health care law, including representing clients in matters relating to HIPAA compliance. If you'd like to learn more about HIPAA compliance from Mike, you can contact him here.

We don't "like" it anymore: 7 reactions from the infertility community to Facebook's new options

Now here's a social media update that has already begun to change the way fertility practices and their patients interact with each other. We have been waiting for this new function for some time. On February 24, Facebook introduced a change to how its users can react to content on the platform. In the past, you posted a status update and people either liked it or they commented on it (if they reacted at all). And that was it. So if I posted a picture of my breakfast, an announcement about starting my new job, or the passing of my Grandmother, you as my Facebook "friend" would have to comment on the photo in order to distinguish your reaction from a general like. The like function would feel very inappropriate if the post mentioned bad news, or very underwhelming if it dealt with something outstanding.

Add $360,000 to Your Fertility Practice's Top Line By Rethinking Your Website

In this post, I take two very technical marketing terms and explain how each of them leads to new patients at your fertility clinic.

but what do we want our website to do?

Why do you have a website? You know you need one. But why? What is its function? Well, if we didn't have a website, no one would be able to find us. Yes, that's true. We want your fertility center's name to appear at the top of a Google search for "IVF" in your area, right? Yes, that's extremely important. Is that all we want? Do we want people just to be able to find us and then not take any action toward scheduling their first visit?

6 Ways Savvy Fertility Clinics Are Preparing to Take IVF Cycles From You in the Next Recession

"Then the Grasshopper knew...it is best to prepare for the days of necessity."

Generally speaking,the last few years have been very good for fertility clinics. We seem to be in a time of abundance. So I write this article now, to reference when the time comes. A mediocre patient experience or sub-par marketing presence may suffice for the moment, but now would be the time to begin improvements to avoid increased vulnerability during any potential drop in IVF cycles.

The BIGGEST Marketing Challenge Facing Fertility Centers in 2016

"If you can't measure it, you can't improve it." --Peter Drucker

Recently, I've been honing in on the fundamental problem that we face in fertility marketing. People e-mail the practice for information but never schedule a consultation. Referral networks don't always deliver the number of patients that they promised. New patients way too long to schedule their first consult with a fertility specialist. How do we prioritize finding solutions to these challenges and is there a greater problem from which they arise? Usually, our greatest problem is that we don't accurately or thoroughly track how our patients come to us.

10 Infertility Support Ideas from a Conversation That Never Would Have Happened 10 Years Ago

On one hand, I absolutely hate millennial business buzzwords, and on the other, I deliberately use them often. I choose to say "silo busting" because of how important it is for different "departments" to be familiar with each other's goals and challenges. "Silos" aren't just separate departments within companies, they can be any sub-category of any group. According to social scientist, Tom Wolff, PhD, of the University of Kansas, all community stakeholders have to be engaged in order to solve common problems facing the community. In the infertility community, our many roles account for many different stakeholders. We have embryologists (scientists), reproductive endocrinologists (doctors), nurses, business managers, patients, support groups, mental health professionals, and advocates (among others).

5 Rules for Writing a Negative Review That Will Make Your Fertility Clinic Listen

"If you're not a size 5, this doctor does not want to help you."

"After trying to contact the Dr. several times, I realized that no-one at this facility gave a crap, or even pretended to care".

"_____ is the worst doctor one can go to...I wanted to smack him right in his office."

Yikes. These are what negative fertility clinic reviews look like sometimes. These aren't hypothetical examples. They are real reviews of fertility doctors in three different U.S. cities. The reviewers may have needed to vent their frustration. Research from Harvard University shows that the stress and anxiety caused by infertility are equal to that caused by cancer. If you are writing a review about your fertility clinic, you may want to use the opportunity to release some of the tremendous frustration and anxiety. Your doctor or practice may be the person to release that on to. Heck, he or she might even deserve it. If your goal is simply to vent your pain and project that on to someone who may be partly responsible, I understand. I do it too often, for far less serious affairs. I make Delta Airlines feel my wrath on Twitter every time I fly with them. It doesn't solve the issue, but I feel a little better. For couples spending thousands of dollars on an emotionally draining fertility journey, the yearning for vindication must be very strong when they are failed.

7 Musts for Using Online Reviews to Avoid Choosing the Wrong Fertility Clinic

Too often, I read an online review of a fertility clinic, in which the person says they wish they would have read other reviews before choosing that practice. In doing your online research, I strongly encourage you to take advantage of the reported experiences of other people, to help inform your decision. More than just a few times, I have read reviews where the person regrets choosing the fertility clinic despite reading negative reviews, sometimes because they followed the advice of a friend.

Power to the Patient: 5 tips for your unbeatable fertility marketing plan in the great information shift

In this week's premier of the final season of Downton Abbey, one of our favorite characters, Anna Bates, reveals her struggle with recurring pregnancy loss. The season takes place in 1925. How different options would have been for Anna and her husband in that period, with respect to both medicine and information technology. How would Anna have learned more about her medical condition in 1925?

Patient or Customer? Self-identity in the business of infertility

Here we are...wrapping up 2015, largely on pause between the major holidays. I'm taking it easy too, so I'm using this blog post to spell out how I can be more helpful to the infertility community in the New Year. That started an honest reflection about how we see self-identities (patients, practices, doctors, me), and what that means about our responsibilities to each other.

The Truth Is Undefeated: A hard look at "questionable techniques" and the current state of fertility marketing

You can tell I'm still relatively new to the fertility space. I don't appear in the top ten Google search results for "fertility marketing". I'm working on that, that's what brought me to check. I was both encouraged and discouraged by something else that did come up, however.

It's unfortunate for the field of reproductive medicine when our top search results for marketing include, "Many Fertility Clinics Use Questionable Marketing Techniques Online", a Jezebel reiteration of a Huffington Post article from three years ago. I would normally argue that we should avoid questionable marketing techniques by using only real patient testimonials and images. But authentic content does not fully address the issue of transparency in fertility marketing . The fundamental problem is that fertility clinics serve two different populations who sometimes overlap and who are sometimes at odds. Until we equally recognize both groups and the value of their experiences, I'm afraid we'll continue to have more problems.

"Democracy Is Not a Spectator Sport": The Top 5 Things I Learned at ASRM's 2015 Advocacy Academy

ASRM held its first ever Advocacy Academy in Washington, D.C. on December 9th and 10th, 2015. About 30 ASRM members met to learn more about advocacy at the state and federal levels, for better legislation on reproductive care. Special focus was paid to Congress's current ban on IVF for veterans, and the pending pieces of legislation that would provide that care to our vets. On Capitol Hill, we met with the offices of our individual members. Being new to advocacy in this way, these are the five most valuable things I learned from ASRM's advocacy workshop.

New Research: IVF success impacts fertility clinic reviews. But how much?

I wish I could say that this new research provides us with all of the answers we've sought, but I think we're left with new questions. That's fine by me, I find it encouraging. We've talked about reproductive endocrinologist (RE) and fertility center reviews, and the psychology behind them. This new data helps us understand how success of treatment impacts the rating of a fertility clinic or fertility doctor review.

Top 7 Ways to Market Your Fertility Practice in 2016

2015 was an interesting year for fertility centers. We saw big mergers in both the United States and Canada to watch large practices become extremely large practices. Meanwhile, other practices sold equity to team up with larger management firms while some reproductive endocrinologists (RE) opened their own clinics. That's no surprise; infertility treatment remains a high-growth category. The Society for Advanced Reproductive Technology (SART) numbers show an increase in ART cycles every year from 2003 to 2013 and we expect the 2014 and 2015 reports to follow the trend.

The Sacred Scroll of Infertility: 8 reasons fertility clinics can't afford to ignore Instagram in 2016

This is worth saying again. Instagram is an insanely powerful social media channel for fertility marketing. I don't say this because data proves that Instagram is the second largest social network in the world. Twitter and Linkedin are large social networks too, but I typically don't recommend that fertility clinics spend too much time with them. They just aren't places where people usually talk about children or the journey of infertility. Instagram is different.

12 Blogs and Podcasts that Fertility Clinics Should Share with Their Patients

I believe that the fertility centers who provide their patients with the most opportunities for information, connection, and community are those that stand to gain. One of the most common pain-points described by people coping with infertility is not having people in their social circles that can relate to their journey.

For this reason, so many people have bravely decided to share their experiences online, and their content has become invaluable to couples and individuals struggling with infertility. Fertility centers can empower their patients by linking to some of this media on their websites, and even sending new patients home with a printed resource.